Ethical, Legal, and Social Issues
National Coalition for Health Professional Education in Genetics (NCHPEG)
- The U.S. Department of Energy (DOE) and the National Institutes of Health (NIH) devoted 3% to 5% of their annual Human Genome Project (HGP) budgets toward studying the ethical, legal, and social issues (ELSI) surrounding availability of genetic information. This represents the world's largest bioethics program, which has become a model for ELSI programs around the world.
- The National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications (ELSI) Research Program was established in 1990 as an integral part of the Human Genome Project (HGP) to foster basic and applied research on the ethical, legal and social implications of genetic and genomic research for individuals, families and communities. The ELSI Research Program funds and manages studies, and supports workshops, research consortia and policy conferences related to these topics.
- The Human Genome Project & ELSI (Ethical, Legal and Social Implications in Genetics) A program designed to address the ethical, legal and social implications of human genetics research. www.nhgri.nih.gov
NCHPEG is an "organization of organizations" committed to a national effort to promote health professional education and access to information about advances in human genetics. NCHPEG members are an interdisciplinary group of leaders from more than 50 diverse health professional organizations, consumer and volunteer groups, government agencies, private industry, managed care organizations, and genetics professional societies. By bringing together these diverse groups to focus on the educational needs of health care professionals, NCHPEG is able to draw on the collective experience and expertise to promote genetics education in a variety of ways.
NCHPEG's mission is to promote health professional education and access to information about advances in human genetics to improve the health care of the nation. NCHPEG seeks to fulfill this mission by:
- integrating genetics content into the knowledge base of health professionals and students of the health professions,
- developing educational tools and information resources to facilitate the integration of genetics into health professional practice, and
- strengthening and expanding the Coalition's interdisciplinary community of organizations and individuals committed to coordinated genetics education for health professionals.
International Society for Nurses in Genetics (ISONG)
ISONG is a global nursing specialty organization dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide. The ISONG vision is: caring for people’s genetic and genomic health. To foster the scientific, professional, and personal development of members in the management of genomic information.
The ISONG Goals:
- Provide a forum for education and support for nurses providing genetic healthcare
- Promote the integration of the nursing process into the delivery of genetic healthcare services
- Encourage the incorporation of the principles of human genetics into all levels of nursing education
- Promote the development of standards of practice for nurses in human genetics
- Advance nursing research in human genetics
- Provide a forum for dialogue with others